This comes after hearing from a parent that her son's school would
not
administer OT to her child because "SI doesn't impact education".
Although I
know this is common in public and private education, I was
moved to respond.
In preparation, I was reminded that many parents at our local
Autism
Society of America meetings don't know what OT or SI are. Their children
are not receiving OT at school or privately. I decided to share this with
you all,
for those who are unfamiliar with OT and SI. In this post, I am
focusing
on SI, but remember, Occupational Therapy is also used for fine
and gross motor
delays which many of our special needs children have.
I can't imagine a case of untreated SI that doesn't interfere
with a child's
education. If the child is distracted and annoyed by
sounds, sights,
movement (or lack of), touch, smells and tastes (among other sensations)
how could
these irritants not interfere with his/her education????
Is this possible?
Try this:
Turn on the radio, but don't tune it.
Leave it on static
and fuzz.
Turn it up. Ask someone to turn the lights on and off, at
will. Strap yourself
into a broken chair that is missing a leg and use a table that
is off balance -
you know the ones in restaurants that makes us all so mad. Now,
put on some
scratchy lace in place of a comfy T-shirt, put your pants on backwards
and wear
shoes one size too small. Pour a bowl of grated parmesan cheese, open a
can
of sardines and bring the cat box to the table. Now, snack on your least favorite
food; the one you NEVER eat because it comes with a gag reflex.
With all this
in
place, pick up a new book and learn something new! How can anyone claim
that SI problems don't interfere with education??
On a more personal note, my son was originally seen by an insightful
and
compassionate rehab clinic that offers st, ot, pt, music therapy and more.
After
their initial observation of my son, I was told that he "may" have PDD,
was exhibiting
autistic tendencies and needed st and ot. I was advised to
give therapy a six month
trial before seeking further medical opinions and
that his progress or lack there
of would be a good indicator of his true
condition.
At that time, my three year old son and I attended private ot
and st for two
years while my son also attended special ed preK with speech and
ot pull
outs. My son continued to progress, though slow at first, then in spurts,
then
leaps and bounds. His prognosis has gone from "probably PDD, might never
marry
or have children, may never become totally independent, may never
communicate normally"
to a 6 year old child that is regarded as completely
typical by his peers, parents,
teachers, and other professionals. I attribute
most of his success to his ot programs, the brushing technique/joint
compressions and sensory diet.
Since the day I first heard the term PDD, I began a search for
more information.
When I didn't think my son met all the criteria for PDD, I continued
my search.
Finally, I read the book "The Out of Sync Child: Sensory Integration
Dysfunction"
and found were my son "fit".Like autism spectrum disorders, the effects
of SID
are wide ranging from the mild to the severe. And like
most children with
an autism spectrum disorder, my son had the signs and symptoms of SID.
I consider
SID a related disorder and I continue to participate with advocacy
and support groups
like my local ASA chapter and the many online listservers
that specifically serve
parents like me.
If your child has symptoms of sensory integration dysfunction,
make an
appointment with an occupational therapist who has
SI experience.
It might
make a world of difference....it might change the life of your child
and the dynamics
of your family.
Finally, don't wait for the information to be delivered. You know
your child
better than all others. Educate yourself about your child. Learn everything
you can about your child's unique challenges and gifts. Then promote those
areas
and share your perspective with all those who wish to help you to
help your child.
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